Table 3 Quality-of-life specific instruments in patients with mastocytosis
From: Quality of life in patients with allergic and immunologic skin diseases: in the eye of the beholder
QoL specific tool | References [PMID] | Total no. items | Recall Period | Domains | Points |
|---|---|---|---|---|---|
MastoCytosis Quality of Life Questionnaire (MC-QoL) | Siebenhaar et al. [112] [26797792] | 27 items designed as 5 points Likert scale | Last 2 weeks | 1. Symptoms 2. Emotions 3. Social life/functioning 4. Skin | 0–108 total points Self-rated QoL impairment cut-off 29 points: mild 50 points: moderate 71 points: severe |
Mastocytosis Quality of Life Questionnaire (MQLQ) | Van Anrooij et al. [105] [27089859] | 49 items designed as 0 to 6 points scale | No specific evaluation time frame | 1. Fatigue and mental health 2. Anaphylaxis 3. Skin symptoms 4. Bone symptoms 5. Un-familiarity 6. Flushing 7. General symptoms 8. Triggers | 0–294 total points Cut-off not defined |
Mastocytosis Symptom Assessment Form (MSAF) | Van Anrooij et al. [105] [27089859] | 20 items designed as 0 to 10 points scale | No specific evaluation time frame | 1. Severity of symptoms 2. Impact of fatigue on daily functioning | 0–200 total points Cut-off not defined |
Mastocytosis Activity Score (MAS) | Siebenhaar et al. [104] [29405310] | 9 items designed as 0 to 5 scale | Daily-evaluation of the last week | 1. Skin symptoms 2. Gastrointestinal symptoms 3. Others | 0–252 total points Self-rated overall disease severity cut-off 11 points: mild 28.1 points: moderate 41.4 points: severe |