Table 2 Quality-of-life specific instruments in patients with hereditary angioedema
From: Quality of life in patients with allergic and immunologic skin diseases: in the eye of the beholder
QoL specific tool | References [PMID] | Total no. items | Recall period | Domains | Points |
|---|---|---|---|---|---|
AE-Qol | Weller et al. [79] [22913638] Validated for angioedema (AE) as a symptom and not for C1-INH-HAE | 17 | Last 4 weeks | 1. Functioning 2. Fatigue/mood 3. Fears/shame 4. Food | 0–100 |
HAE-Qol | Prior et al. [87] [22817696]; Prior et al. [88] [26969268] Validated for hereditary angioedema (HAE) | 25 | Last 6 months | 1. Physical functioning and health 2. Role emotional and social functioning 3. Concern about offspring 4. Treatment difficulties 5. Disease-related stigma 6. Perceived control over illness 7. Mental Health | 25–135 |