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Table 1 Registries on severe asthma currently available in USA and Europe

From: SANI-Severe Asthma Network in Italy: a way forward to monitor severe asthma

Registry (reference)

Country

No. of centers

Study population

Outcomes

TENOR [8, 9]

USA

283

4.756

Natural history of SA

BSAR [10]

Belgium

9

350

Definition of clinical phenotypes in SA

Spanish Multi-Centers Registry [11]

Spain

30

266

Omalizumab efficacy

Spanish Multi-Centers Registry [12]

Spain

30

295

Omalizumab efficacy

NEONET [13]

Italy

9

112

Omalizumab efficacy and safety

ARRISA [14]

UK

29 Primary care practices

911

Impact of the network on exacerbation

BTS Severe Refractory Asthma Registry [15]

UK

4

382

Phenotype characterization, standardized assessment

BTS Severe Refractory Asthma Registry [16]

UK

4

349

Three years follow up

BTS Severe Refractory Asthma Registry [17]

UK

4

349

Phenotype stability over time

BTS Severe Refractory Asthma Registry [18]

UK

7

516

Economic analysis of SA

BTS Severe Refractory Asthma Registry [19]

UK

7

808

Comorbidity due to the use of systemic steroid

  1. TENOR The epidemiology and natural history of asthma:outcomes and treatment regimens, BSAR Belgian Severe Asthma Registry, NEONET Italian North-East Omalizumab Network, ARRISA at risk register in severe asthma, BTS British Thoracic Society